Aspynne took two half doses of her medication today. She took it fine....didn't seem to mind the taste at all, which is good.
She didn't take a morning nap despite how tired she was. Not sure if it was due to the morning medication or just because of her crazy schedule the past few days.
Nonetheless, she did crash around 1pm today, and slept over 4 hours! (Drowsiness is normal in the beginning, so I'm not surprised by this one).
She woke up around 5:30pm tonight, ate well, and then proceeded to play while we waited for Addyson to get home from gymnastics.
By the time we all sat down to dinner at 8pm, Aspynne was D.O.N.E. She was very cranky, seemed mad and very agitated at everything. None of us could do anything to soothe her. She even refused a bite of chocolate cake!
I am so worried that this is what we have to look forward to on these meds. I am going to chalk today up to a crazy past few days, and no morning nap....but I sincerely hope that these are not side effects that are showing up from only two half doses. I am so scared that I am going to lose the most precious little personality I've ever known.
I have prayed over and over again today that she'll be back to my little Aspynne tomorrow.
Tuesday, August 31, 2010
Monday, August 30, 2010
Cook Children's Visit
Today we headed out to see Dr. Scott Perry at Cook Children's Hospital in Fort Worth. We waited all of 2 minutes before being called back where Aspynne got weighed and measured. We proceeded to our room where they were going to take Aspynne's BP before the Dr. came in, but Aspynne wasn't too thrilled about the cuff...so guess what they did? They took the machine away and said no biggie, we don't need it if it's going to make her upset. Wow. Welcome to Cook's!
We waited all of 2 minutes and the Dr. was in our room. Wow. Dr. Perry spent almost 30 minutes with us today, which is amazing! The old neurologist gave us 5 minutes max before he shuffled us out the door with no more knowledge than we came in with.
The doc spent quite some time "checking out" Aspynne, playing with her, assessing her actions, movements, etc. He stepped out to look over her MRI, came back and talked with us some more.
Here is what we learned today:
Aspynne is most likely having "partial" not "generalized" seizures. This means that they start in one part of her brain and travel to another. It is not uncommon for one to feel these coming on...which would explain why she came to me last time. It is also a clue that we need to find the part of her brain where they are starting. Dr. Perry asked if we remembered which direction she fell, if her head went a certain way, or if her eyes pulled to a certain size when she was seizing. We are pretty positive that she often goes to the right, which means the seizure is coming from the left hemisphere of her brain.
Dr. Perry was also interested in the tosis (lowering of the eyelid) that she had on the left side of her face. He asked about our visits with her Pediatric Opthamologist...and what she had said. I had breifly thought there might be a correllation, but the old neuro didn't seem interested, and I had dismissed it. Aspynne's whole left side of her face is "droopy," as if in someone that had a stroke. I read today about a similar toddler that had in fact, had a stroke.....in utero. It had never occurred to me that this could even happen, but it is a possibility.
The doctor also advised that we go ahead and put Aspynne on anti-seizure medication. We had previously been very skeptical and leery of this because of all the bad side effects the other neuro had advised us of. However, Dr. Perry explained it to us....and told us WHY it's important that we go ahead and medicate. First, while neurologists are fairly confident that one or two short seizures such as Aspynne had don't do any severe neurological damage, they are not certain of what kind of damage multiple, continued seizures can cause. Allowing her to just continue to have seizures would not be good for her or her brain, and could, in the long run, cause some long-term effects on her brain. Secondly, even though her first 3 seizures have all been less than 2 minutes, and identical, that doesn't mean that the next one or the one after that will be the same. There is nothing that says one of those seizures couldn't be the 20 or 30 minute one that causes significant brain damages and changes her life forever. The only way to stop the seizures is to medicate. And, with the right medication, we should be able to get her to a seizure-free state with minimal, if any, side effects for a couple of years and then wean her off the medication all together. Dr. Perry has chozen Oxcarbazepine for her due to it's very low percentage and mild occurrence of side effects. It also has a pretty wide range of dosing options, so we can start her out on a very small dose, and increase as needed until we get to the right dosage where she is no longer having any seizures.
Dr. Perry has also asked us to do another EEG. Not only does he want one in his own facility that he can review himself, but something could show up on this one that the first did not show. We are scheduled for another sleep deprived EEG this Thursday at 3pm.
Overall, we learned a LOT. We absolutely loved the new facility and the new Dr., and really feel that we are on the right track. While we are not thrilled about medicating her, we now understand why it is the right move at this point. We know that if we see side effects that we don't like, we can switch to another medication until we find the one that is right for her.
For those of you on the prayer wagon....what we pray for now is that we can go easily onto this medication, and that we do not see ANY side effects. Aspynne is the most precious little girl ever (yes, I'm biased). Her personality is PERFECT and we don't want ANYTHING to change that.
I will keep you all updated as we progress onto the meds, and after the EEG on Thursday.
We waited all of 2 minutes and the Dr. was in our room. Wow. Dr. Perry spent almost 30 minutes with us today, which is amazing! The old neurologist gave us 5 minutes max before he shuffled us out the door with no more knowledge than we came in with.
The doc spent quite some time "checking out" Aspynne, playing with her, assessing her actions, movements, etc. He stepped out to look over her MRI, came back and talked with us some more.
Here is what we learned today:
Aspynne is most likely having "partial" not "generalized" seizures. This means that they start in one part of her brain and travel to another. It is not uncommon for one to feel these coming on...which would explain why she came to me last time. It is also a clue that we need to find the part of her brain where they are starting. Dr. Perry asked if we remembered which direction she fell, if her head went a certain way, or if her eyes pulled to a certain size when she was seizing. We are pretty positive that she often goes to the right, which means the seizure is coming from the left hemisphere of her brain.
Dr. Perry was also interested in the tosis (lowering of the eyelid) that she had on the left side of her face. He asked about our visits with her Pediatric Opthamologist...and what she had said. I had breifly thought there might be a correllation, but the old neuro didn't seem interested, and I had dismissed it. Aspynne's whole left side of her face is "droopy," as if in someone that had a stroke. I read today about a similar toddler that had in fact, had a stroke.....in utero. It had never occurred to me that this could even happen, but it is a possibility.
The doctor also advised that we go ahead and put Aspynne on anti-seizure medication. We had previously been very skeptical and leery of this because of all the bad side effects the other neuro had advised us of. However, Dr. Perry explained it to us....and told us WHY it's important that we go ahead and medicate. First, while neurologists are fairly confident that one or two short seizures such as Aspynne had don't do any severe neurological damage, they are not certain of what kind of damage multiple, continued seizures can cause. Allowing her to just continue to have seizures would not be good for her or her brain, and could, in the long run, cause some long-term effects on her brain. Secondly, even though her first 3 seizures have all been less than 2 minutes, and identical, that doesn't mean that the next one or the one after that will be the same. There is nothing that says one of those seizures couldn't be the 20 or 30 minute one that causes significant brain damages and changes her life forever. The only way to stop the seizures is to medicate. And, with the right medication, we should be able to get her to a seizure-free state with minimal, if any, side effects for a couple of years and then wean her off the medication all together. Dr. Perry has chozen Oxcarbazepine for her due to it's very low percentage and mild occurrence of side effects. It also has a pretty wide range of dosing options, so we can start her out on a very small dose, and increase as needed until we get to the right dosage where she is no longer having any seizures.
Dr. Perry has also asked us to do another EEG. Not only does he want one in his own facility that he can review himself, but something could show up on this one that the first did not show. We are scheduled for another sleep deprived EEG this Thursday at 3pm.
Overall, we learned a LOT. We absolutely loved the new facility and the new Dr., and really feel that we are on the right track. While we are not thrilled about medicating her, we now understand why it is the right move at this point. We know that if we see side effects that we don't like, we can switch to another medication until we find the one that is right for her.
For those of you on the prayer wagon....what we pray for now is that we can go easily onto this medication, and that we do not see ANY side effects. Aspynne is the most precious little girl ever (yes, I'm biased). Her personality is PERFECT and we don't want ANYTHING to change that.
I will keep you all updated as we progress onto the meds, and after the EEG on Thursday.
Thursday, August 26, 2010
Aspynne Update 8-26-10
What an emotional roller coaster of a day.
We awoke this morning shortly after 5am so that we could get up, get ready and head for the hospital. Everything went smoothly getting Aspynne up at 6, dressing her in some comfy pj's, scooping up her favorite baby and heading out the door. I felt a little bad that I couldn't give her anything but a sip of water, but as any "day surgery" would have it...that's all she could have.
We arrived plenty early, got checked in and were escorted to our room. We proceeded down several long white hallways and turned the corner toward Room 23. That's where it really begin to sink in. As we walked into the room, we were greeted by a hospital "baby" bed, and the tiniest little yellow hospital gown I've ever seen. It was really sad. I have such a newfound respect for parents who have had to spend countless hours in hospitals with their little angels.
We had to wait a little over an hour before they came to get her for her MRI, and without the ability to bribe and pass time with food, but she really did well. After some Clifford and some time playing with Mommy & Daddy's shoes, it was at last, time to head downstairs to Radiology.
I went into the MRI room with Aspynne as Bob looked on from the door. I laid her down on the table, and the anesthesiologist put the mask over her face. She fought hard for a few seconds, but I held her hand, rubbed her hair, and tried to calm her down. I kept telling her that it would be alright, and to go to sleep, the whole time imagining how I'd feel if something went wrong, and I was the one telling her to just go to sleep. After a few more seconds, she got still, looked at me, and after a few more breaths and some eyelash flutters, my baby was under. Despite the tears, the anestheisologist made me leave her (meany), and Bob and I headed to the waiting room.
The staff was amazing, updating us 5 minutes into the procedure to let us know that she was doing great, again at 15 minutes, and with 5 minutes to go. I looked up, and a nurse was holding her, motioning us to come take her out in the hallway.
While I held her we were wheeled back to our room where we would wait for the anesthesia to wear off. Surprisingly, she became really angry and violent coming off the drugs, but we kept being reassured that was normal. After about 30 minutes, she was calming down, and we were being discharged!
We brought her home where she ate a big lunch (go figure), played for a while, and headed down for a nap. Bob and I headed up to church so that we could pray. We spent quite some time at the alter. I can't speak for Bob, but I prayed that God had heard our prayers. I prayed that he had healed her, and I prayed that we wouldn't see a thing on that MRI.
We went upstairs to say hi to a couple of the staff members when my phone rang. It was the pediatrician saying she had already read and received the report from the MRI, and the scan was completely normal. There was nothing absolutely NOTHING wrong in her brain. Hallelujah! Bob and I headed back downstairs to thank God for his swift response to our prayer! He is so good!
While we are back to not knowing what is causing the seizures, we do know that it is NOT one of the bad things that could be causing them. And that, my friends, is GREAT news!
Aspynne is in great spirits this evening, eating and playing well. Her poor little eyes are all red and tired, but she is so strong. She is going to be just fine.
Thank you all for your prayers and support. I have no doubt that God heard and answered our prayers.
We awoke this morning shortly after 5am so that we could get up, get ready and head for the hospital. Everything went smoothly getting Aspynne up at 6, dressing her in some comfy pj's, scooping up her favorite baby and heading out the door. I felt a little bad that I couldn't give her anything but a sip of water, but as any "day surgery" would have it...that's all she could have.
We arrived plenty early, got checked in and were escorted to our room. We proceeded down several long white hallways and turned the corner toward Room 23. That's where it really begin to sink in. As we walked into the room, we were greeted by a hospital "baby" bed, and the tiniest little yellow hospital gown I've ever seen. It was really sad. I have such a newfound respect for parents who have had to spend countless hours in hospitals with their little angels.
We had to wait a little over an hour before they came to get her for her MRI, and without the ability to bribe and pass time with food, but she really did well. After some Clifford and some time playing with Mommy & Daddy's shoes, it was at last, time to head downstairs to Radiology.
I went into the MRI room with Aspynne as Bob looked on from the door. I laid her down on the table, and the anesthesiologist put the mask over her face. She fought hard for a few seconds, but I held her hand, rubbed her hair, and tried to calm her down. I kept telling her that it would be alright, and to go to sleep, the whole time imagining how I'd feel if something went wrong, and I was the one telling her to just go to sleep. After a few more seconds, she got still, looked at me, and after a few more breaths and some eyelash flutters, my baby was under. Despite the tears, the anestheisologist made me leave her (meany), and Bob and I headed to the waiting room.
The staff was amazing, updating us 5 minutes into the procedure to let us know that she was doing great, again at 15 minutes, and with 5 minutes to go. I looked up, and a nurse was holding her, motioning us to come take her out in the hallway.
While I held her we were wheeled back to our room where we would wait for the anesthesia to wear off. Surprisingly, she became really angry and violent coming off the drugs, but we kept being reassured that was normal. After about 30 minutes, she was calming down, and we were being discharged!
We brought her home where she ate a big lunch (go figure), played for a while, and headed down for a nap. Bob and I headed up to church so that we could pray. We spent quite some time at the alter. I can't speak for Bob, but I prayed that God had heard our prayers. I prayed that he had healed her, and I prayed that we wouldn't see a thing on that MRI.
We went upstairs to say hi to a couple of the staff members when my phone rang. It was the pediatrician saying she had already read and received the report from the MRI, and the scan was completely normal. There was nothing absolutely NOTHING wrong in her brain. Hallelujah! Bob and I headed back downstairs to thank God for his swift response to our prayer! He is so good!
While we are back to not knowing what is causing the seizures, we do know that it is NOT one of the bad things that could be causing them. And that, my friends, is GREAT news!
Aspynne is in great spirits this evening, eating and playing well. Her poor little eyes are all red and tired, but she is so strong. She is going to be just fine.
Thank you all for your prayers and support. I have no doubt that God heard and answered our prayers.
Monday, August 23, 2010
Aspynne Update 8-23-10
Can I just start by saying that I dropped my baby girl off at Kindergarten this morning?!?!? I can't believe that she is already in school. Where did the time go?
After drying my tears from the morning drop-off, I scooped up Aspynne to take her to the pediatrician. While this was her "18 month checkup," this is the first time we've seen the Pediatrician since the first seizure, and she was unaware that we had experienced a third on Saturday.
Aspynne's checkup went well. She has a viral infection that is causing her rash, her runny nose and her lovely diarreah, but it's nothing to worry about and just needs to run its course. I did find out that when Aspynne's immune system is weakened by something like a virus or an infection that she is more prone to seize, so it will be imperative that we try to keep her well and get her a flu shot this year.
I spoke with the Pediatrician about her episode on Saturday, and about our bad second visit with our current Neurologist. I told her that we did NOT want to have to go back to him, and that we wanted to put all of our efforts into getting into Cook Children's. She was behind us 100%, and said that she would call to see if she could get them to move up our October 27th appointment.
I had no more than pulled out of the parking lot of the Dr.'s office when Bob called me saying that the Dr.'s office had just called him, and that they had gotten us an appointment at Cook's for Monday. ?!?!?! This Monday??? As in a week from today? Yep....that's what I'm saying!
It's great news that we will get to go to Cook's so soon and get to talk to another Pediatric Neurologist about what's been going on with Aspynne. We will have the MRI in hand by then for them to examine, and we will take with us the EEG that was previously done, as well. With any luck, we will know something very soon.
I'll keep you all updated.
After drying my tears from the morning drop-off, I scooped up Aspynne to take her to the pediatrician. While this was her "18 month checkup," this is the first time we've seen the Pediatrician since the first seizure, and she was unaware that we had experienced a third on Saturday.
Aspynne's checkup went well. She has a viral infection that is causing her rash, her runny nose and her lovely diarreah, but it's nothing to worry about and just needs to run its course. I did find out that when Aspynne's immune system is weakened by something like a virus or an infection that she is more prone to seize, so it will be imperative that we try to keep her well and get her a flu shot this year.
I spoke with the Pediatrician about her episode on Saturday, and about our bad second visit with our current Neurologist. I told her that we did NOT want to have to go back to him, and that we wanted to put all of our efforts into getting into Cook Children's. She was behind us 100%, and said that she would call to see if she could get them to move up our October 27th appointment.
I had no more than pulled out of the parking lot of the Dr.'s office when Bob called me saying that the Dr.'s office had just called him, and that they had gotten us an appointment at Cook's for Monday. ?!?!?! This Monday??? As in a week from today? Yep....that's what I'm saying!
It's great news that we will get to go to Cook's so soon and get to talk to another Pediatric Neurologist about what's been going on with Aspynne. We will have the MRI in hand by then for them to examine, and we will take with us the EEG that was previously done, as well. With any luck, we will know something very soon.
I'll keep you all updated.
Sunday, August 22, 2010
Aspynne.....
Ok, so I know that there are many people out there praying for Aspynne and our family..... Some that know exactly every detail of what's transpired, others who were just asked to jump in and pray for us this weekend at VCC.
Either way, I thought that regularly updating this blog with updates as we move forward in this process would just be the easiest way to keep everyone "in the know."
For those of you who don't know what's exactly going on, it all started July 13th. Aspynne had a seizure in the morning, while at home, shortly after she awoke. It was very chaotic, as I had never seen a seizure, much less ever held my child in my arms while she appeared as if she were going to die any second. I fell to my knees, begging God not to take her from me. We called 911, who responded in less than 5 minutes, in which time the seizure had long since ended, and thus began our journey.
Several hours that day were spent at the pediatrician's office being monitored, blood tested, etc... Everything seemed fine. The pediatrician scheduled us for an EEG, and got us an appointment with a Pediatric Neurologist for two days later. Aspynne had to be "sleep deprived" for the EEG because they needed to get some sleeping brain waves, so that was an undertaking, but she did amazingly well. She went right to sleep in mommy's arms, and didn't cry once when they were gluing or removing the 21 nodes that were attached to her head.
The EEG was clear. She does, in fact, have quite "mature" brain activity for her age. (Whatever that means). The Neurologist assured us that sometimes these things just happen in children. Freak accidents that you never know the cause of.... We talked about the what if's, and we went on about our way, knowing that she was only about 25% to have a second seizure.
It was really rough those first few days after the seizure. I started out not being able to look at her without seeing her eyes rolled into the back of her head. Then I became fearful of her every step. Finally, I was scared to be alone with her...my own child. I asked for healing, strength, understanding, peace. After a few days life returned to normal, and it was just something really scary that happened once upon a time.
Then came August 10th. Seizure #2. I was at the office when I got the call from Bob asking me to come home. He had stepped out for lunch, and the nanny had gotten her through it. It was identical to the first. Around a minute, generalized, all over, typical tonic-clonic seizure. We called the Neurologist and basically got a "we'll put it in her chart" and a "let us know if you guys decide you want to medicate her." Needless to say, those weren't the answers we were looking for.
A nice little chat with our pediatrician got us another visit with the Neurologist (that we didn't care for to start with), but as I quickly found out, I don't have many options. Children's Medical Center has to have a board decide if you can even be a patient of theirs, and then you have to wait months to get an appointment. While no board decision is needed to get into Cook Children's, it isn't much of a shorter wait. We got an appointment for Oct. 27th, and decided in the meantime to go ahead and take the next step in having an MRI.
We went to the neurologist Friday morning, and he basically told us that he "didn't have anything to tell us that he didn't tell us last time." We did, however, get to ask some questions about the upcoming MRI, so at least the appointment wasn't completely in vain.
Yesterday, August 21st, marked seizure #3. This time, only 11 days after the last. We were visiting my parent's house for the day, and we hadn't been there just a few minutes when she had this episode. I knew from the moment I got her up yesterday morning that she "wasn't right." I even told Bob that we need to keep an eye on her because I just felt something was wrong. Aspynne walked right up to me and sat down before the seizure came on. She looked into my eyes as if to tell me it was about to happen. I saw it, and reached for her head right as it went down to the floor. Same story as the first two....identical in almost every way.
This morning, Sunday, August 22nd, we had a large host of individuals pray over her at church during service. Elders, pastors, friends, teachers, and several others all joined forces in asking God to heal her. I know he heard our prayer. While it is painful, I know that he is in control of both her and this situation, and I know that he can heal her.
Tomorrow, we go back to the pediatrician for her 18 month checkup, get some shots, let her know about seizure #3, and talk about our game plan to get our appointment at Cook Children's moved up.
Thursday, we have an MRI scheduled for Aspynne at Presbyterian of Plano at 9am. She will have to go under anesthesia for the procedure, and we will be there a few hours, but don't forsee any reason why we won't be home shortly after noon (after a trip to VCC where they will be hosting a day of prayer & fasting).
The MRI could show us what's wrong...tumor, cyst, bleed, spinal fluid leak, malformation, etc. Or...it could not. If it does not, we'll be focusing more on if we think we need to medicate her with anti-seizure meds, which is a whole other ballgame. I'll fill you in on all the lovely risks of those medicines next time. For now, I've just recounted so much of this that I am spent.
Please continue to lift us up in your thoughts and prayers. I ask that you pray for Aspynne and her healing. I also ask that you pray for Addyson, her sister, and her patience and understanding. Addyson starts Kindergarten tomorrow, and she hasn't been getting quite the attention she deserves lately because of how tied up we have been with Aspynne. I also ask that you keep Bob & I in your thoughts as we continue to try to be strong for our daughters and get answers for our family.
Thanks again to every single one of you that prayed over us today. It was truly amazing.
Either way, I thought that regularly updating this blog with updates as we move forward in this process would just be the easiest way to keep everyone "in the know."
For those of you who don't know what's exactly going on, it all started July 13th. Aspynne had a seizure in the morning, while at home, shortly after she awoke. It was very chaotic, as I had never seen a seizure, much less ever held my child in my arms while she appeared as if she were going to die any second. I fell to my knees, begging God not to take her from me. We called 911, who responded in less than 5 minutes, in which time the seizure had long since ended, and thus began our journey.
Several hours that day were spent at the pediatrician's office being monitored, blood tested, etc... Everything seemed fine. The pediatrician scheduled us for an EEG, and got us an appointment with a Pediatric Neurologist for two days later. Aspynne had to be "sleep deprived" for the EEG because they needed to get some sleeping brain waves, so that was an undertaking, but she did amazingly well. She went right to sleep in mommy's arms, and didn't cry once when they were gluing or removing the 21 nodes that were attached to her head.
The EEG was clear. She does, in fact, have quite "mature" brain activity for her age. (Whatever that means). The Neurologist assured us that sometimes these things just happen in children. Freak accidents that you never know the cause of.... We talked about the what if's, and we went on about our way, knowing that she was only about 25% to have a second seizure.
It was really rough those first few days after the seizure. I started out not being able to look at her without seeing her eyes rolled into the back of her head. Then I became fearful of her every step. Finally, I was scared to be alone with her...my own child. I asked for healing, strength, understanding, peace. After a few days life returned to normal, and it was just something really scary that happened once upon a time.
Then came August 10th. Seizure #2. I was at the office when I got the call from Bob asking me to come home. He had stepped out for lunch, and the nanny had gotten her through it. It was identical to the first. Around a minute, generalized, all over, typical tonic-clonic seizure. We called the Neurologist and basically got a "we'll put it in her chart" and a "let us know if you guys decide you want to medicate her." Needless to say, those weren't the answers we were looking for.
A nice little chat with our pediatrician got us another visit with the Neurologist (that we didn't care for to start with), but as I quickly found out, I don't have many options. Children's Medical Center has to have a board decide if you can even be a patient of theirs, and then you have to wait months to get an appointment. While no board decision is needed to get into Cook Children's, it isn't much of a shorter wait. We got an appointment for Oct. 27th, and decided in the meantime to go ahead and take the next step in having an MRI.
We went to the neurologist Friday morning, and he basically told us that he "didn't have anything to tell us that he didn't tell us last time." We did, however, get to ask some questions about the upcoming MRI, so at least the appointment wasn't completely in vain.
Yesterday, August 21st, marked seizure #3. This time, only 11 days after the last. We were visiting my parent's house for the day, and we hadn't been there just a few minutes when she had this episode. I knew from the moment I got her up yesterday morning that she "wasn't right." I even told Bob that we need to keep an eye on her because I just felt something was wrong. Aspynne walked right up to me and sat down before the seizure came on. She looked into my eyes as if to tell me it was about to happen. I saw it, and reached for her head right as it went down to the floor. Same story as the first two....identical in almost every way.
This morning, Sunday, August 22nd, we had a large host of individuals pray over her at church during service. Elders, pastors, friends, teachers, and several others all joined forces in asking God to heal her. I know he heard our prayer. While it is painful, I know that he is in control of both her and this situation, and I know that he can heal her.
Tomorrow, we go back to the pediatrician for her 18 month checkup, get some shots, let her know about seizure #3, and talk about our game plan to get our appointment at Cook Children's moved up.
Thursday, we have an MRI scheduled for Aspynne at Presbyterian of Plano at 9am. She will have to go under anesthesia for the procedure, and we will be there a few hours, but don't forsee any reason why we won't be home shortly after noon (after a trip to VCC where they will be hosting a day of prayer & fasting).
The MRI could show us what's wrong...tumor, cyst, bleed, spinal fluid leak, malformation, etc. Or...it could not. If it does not, we'll be focusing more on if we think we need to medicate her with anti-seizure meds, which is a whole other ballgame. I'll fill you in on all the lovely risks of those medicines next time. For now, I've just recounted so much of this that I am spent.
Please continue to lift us up in your thoughts and prayers. I ask that you pray for Aspynne and her healing. I also ask that you pray for Addyson, her sister, and her patience and understanding. Addyson starts Kindergarten tomorrow, and she hasn't been getting quite the attention she deserves lately because of how tied up we have been with Aspynne. I also ask that you keep Bob & I in your thoughts as we continue to try to be strong for our daughters and get answers for our family.
Thanks again to every single one of you that prayed over us today. It was truly amazing.
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